Our Surveys

Non-motor Symptoms 

Run by The University of Plymouth, this survey looks to find out more about how and how frequently help is sought for non-motor problems.

  • <10 minutes
  • Individuals with Parkinson’s only

PRISM study

Conducted by Wickenstones, looking into how PD affects day-to-day life. It includes questions about the medications, healthcare and other services you use to help better understand PwP’s experiences and needs.

  • Approx 40 minutes
  • Individual with Parkinson’s and primary carepartner

EPDA Carers survey 2019

This survey aims is to provide information which can help the European Parkinson’s Disease Association develop advocacy tools to campaign for better support for carers of PwP. 

  • 15-20 minutes
  • Individuals who provide ongoing support to PwP.

Symptoms and Genetics

Gathering insights about each unique combination of symptoms to better define subtle differences that impact research and clinical trials.

  • 5-10 minutes
  • Individuals with Parkinson’s only.

Neurological Alliance

The purpose of the survey is to provide information which can help the Neurological Alliance monitor and improve the future quality of health services and social care for people with neurological conditions.

  • 10-15 minutes
  • Individuals with any neurological condition.

Urinary Symptoms and Parkinson’s disease

Run by the Parkinson Alliance, the surveyfocuses on understanding the experience of urinary symptoms of PwP. The survey is open until 1st December, 2019.

  • <20 minutes
  • ALL individuals with PD, including individuals with and without urinary symptoms.

All Parkinson’s Movement and The Cure Parkinson’s Trust surveys are fully anonymised. 

Everyone with Parkinson’s has their own combination of symptoms – and this impacts research and clinical trials. It therefore helps define Parkinson’s from your perspectives.

We need your help, please try and answer as many questions as you possibly can. Your views, opinions and experiences will shape research.

 

LATEST SURVEY OBSERVATIONS

%

of people have reported experiencing a loss of smell

The three most commonly reported non-motor symptoms:

Fatigue

Anxiety

Constipation

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