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Rapsodi is a pioneering UK based study which uses the internet to find new ways of diagnosing Parkinson’s earlier to develop life changing treatments. For more information visit – https://www.rapsodistudy.com/en
In the last few years our understanding of the causes of Parkinson’s has rapidly developed, and now we need to translate that understanding into treatments that slows the progression of the condition.
We now believe that there are many different causes for example we know that variants in mitochondrial genes can cause specific forms of Parkinson’s. Mitochondrial genes control the mitochondria which create energy within the cells. What we learn from genetic forms of Parkinson’s may also be relevant for other forms of the condition.
The aim of this study is to collect information and samples from people with Parkinson’s and attempt to group and stratify people with Parkinson’s based on markers of mitochondrial dysfunction.
The investigators are studying people with both genetic forms of Parkinson’s and those with idiopathic Parkinson’s (i.e. where the cause is not known), as well as a healthy control group.
All groups will undergo standardised clinical assessment to collect information on several aspects of their condition and will be asked to provide blood, urine and optionally cerebrospinal fluid and skin samples from which various biochemical and genetic tests will be performed.
All participants will be asked to fast overnight (10 hours) before the study appointment, but all medications can be taken with water. Fasting is required as some of the tests are sensitive to different types of food so can affect the results.
The investigators are particularly interested in those with known genetic causes of their PD such as Parkin and PINK1 carriers, as well as people with early onset Parkinson’s (diagnosed when less than 40 years old) and healthy controls can be non-blood relatives such as wives, husbands or friends.
Study appointments will take place at the Royal Free Hospital in London. Up to £50 of travel expenses can be claimed to attend the visit.
For more information and to register to take part, please visit: https://clinicaltrials.gov/ct2/show/NCT03421899
100,000 Genomes Project
Vision in Parkinson's Study
NILO-PD Study (USA)
Parkinson's Family Project
Please click here for the Movement Disorders Centre at the UCL Institute of Neurology, to explore all of UCL open research studies.