The Power of the Parkinson’s Patient According to Tom Isaacs: A Call to Action
Original article: The Power of the Parkinson’s Patient According to Tom Isaacs: A Call to Action, European Journal of Neuroscience: to be published early 2019.
The takeawaySoania Mathur adds her powerful advocate voice along with the words of Tom Isaacs, a person with Parkinson’s and founder of The Cure Parkinson’s Trust. She outlines four key ways in which people with Parkinson’s can become active participants in the search for better treatments and a cure.
Why is it important?This is a call to action from within the Parkinson’s community highlighting concrete ways in which Tom’s core principles can translate into action today.
Impact quote“There are a few people that I’ve come across during my journey with Parkinson’s disease, people that you can see are visionary, whose dedication to the community is so selfless and passionate that you can’t help but be inspired by them. Tom Isaacs embodied those qualities. His insightful and impactful vision of patient involvement in identifying needs and urgently pursuing the discovery and development of better treatments and the search for a cure, will be a part of his legacy. His words will, I’m sure, continue to inspire the Parkinson’s community to continue work together to reach our common goal – a world without Parkinson’s.”
BackgroundTom Isaacs, who founded The Cure Parkinson’s Trust and lived with Parkinson’s, saw himself and others with the condition as active participants in the search for better treatments and a cure. His core belief was that patients must be involved at every step of the way. Sonia Mathur captures the essence of the principles that can fuel an empowered, active community. She outlines four ways in which people with Parkinson’s can engage in eventually relegating this condition to the history books.
- Patients as resources
Original article: Mathur, S. To be published early 2019. The Power of the Parkinson’s Patient According to Tom Isaacs: A Call to Action, European Journal of Neuroscience.