Age diagnosed: 45
Specialist interest: Exercise, research, supporting newly diagnosed
‘Take one day at a time, be kind to yourself and do something fun every day’ a friend advised when I was diagnosed with Parkinson’s Disease. I have lived by that mantra ever since, exercising, setting myself challenges, spending quality time with family and friends and travelling. Of course I would never have chosen to have Parkinson’s Disease but I have chosen to be an active part of the Parkinson’s community after meeting so many amazing and inspirational people, supporting each other, each making a difference in their own way and collectively striving to find a cure.
Exercise, exercise, exercise!
I play tennis, box three times a week, practice yoga and cycle. In 2017, I cycled 500km through Vietnam and Cambodia to raise funds for research, to show that it is possible, to give me an exercise goal to focus on and to raise awareness of Young Onset Parkinson’s Disease.
In 2018, I cycled over 1,000 miles from Land’s End to John O’Groats and am now turning my thoughts to the next challenge!
When I’m not exercising or planning a challenge, I raise awareness of the challenges of living with Young Onset Parkinson’s Disease and the benefits of exercise by speaking at a variety of meetings for health care professionals and others.
I am growing a young person’s network in Gloucestershire and offer support and buddying to those newly diagnosed with Young Onset Parkinson’s Disease.
I volunteer for the Parkinson’s UK local development team, identifying and addressing gaps in services in terms of activities and support for people with Parkinson’s Disease.
I am actively involved in research, taking part in a number of projects.
Vietnam to Cambodia Blog: https://thecyclopaths.wordpress.com
Land’s End to John O’Groats (LEJOG) Blog: https://lejog.blog