Age diagnosed: 30
Specialist interest: Supporting newly diagnosed
Click to see Clare’s blog: Curly Clare
Starting a working age support group in South Yorkshire.
I recently wrote a poem which was published by Clyde Campbell from the shake it up foundation in Australia.
Part of the Clinical Excellence Networking Group.
At the age of 30 I was diagnosed with Parkinson’s disease, yes age 30! I have continued to live life to the full. I have climbed the ranks at work; in a job that I love, and feel passionate about. I have returned to university obtaining a Masters Certificate whilst working full time (I honestly wouldn’t recommend this!!) I married my best friend and after 14 years together, we eloped to Gretna Green in Scotland. Our son took the most amazing pictures of this day and special memories were made. I’m proud of my achievements, but most of all I’m proud of myself for not giving in. For continuing to fight, even when the going gets tough; which believe me I know it does. I have no miracle cure, I take no wonder drugs. I do believe that my positive, outgoing personality and determination to succeed has helped tremendously throughout my journey. This is no easy task but we owe it to ourselves to give it our all. I may have PD but it certainly does not have me!
This month it will be 10 years post-diagnosis. I intend on raising a glass. I’m not sure a celebration is the right word to use, but every step we take to overcome our daily battle with PD should be celebrated.
- Supporting people newly diagnosed.
- Raising awareness and promoting people’s efforts and determination when living with a long term condition.
- Continuing to fly the flag for the future of Parkinson’s treatments.
- Embrace the challenges we face and encourage YOPD.
- Promote wellbeing feeling good on the inside- mind matters.
What advice would you give for anyone looking to get involved in research?:
“Take some control, it’s your future. Don’t ’expect a miracle but make your own dreams reality.”