Robin Buttery


Age diagnosed: 43

Specialist interest: Awareness and Media, Clinical trials, YOPD

I am married with a son, and still in full time employment in education. 

Recent advocacy includes:

  • being the world’s first person with Parkinson’s disease to row an ocean as part of the team Indian Ocean Row 2018
  • speaking about my journey with Parkinson’s
  • research and rowing at a local, national and international level on TV, radio and, in fact, most forms of media

What is the one thing you want to change in the world?

People’s perception of Parkinson’s and disability.

What advice would you give to others who are keen to get involved in Parkinson’s research?

Don’t talk about it, Just do it!

Is there a piece of reading you would recommend to someone wanting to find out more about Parkinson’s research?

Mary Shelley ‘Frankenstein’.   


Instagram: indianoceanrow

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