Tom Gisby


Age diagnosed: 33

Specialist interest: Exercise, employment, YOPD

I’m an editor and composer, diagnosed with Parkinson’s in 2014. Becoming involved with awareness, research, and fundraising has been a positive experience for me,  and hopefully one that helps others. A keen runner, I’m interested in the beneficial effects of exercise with Parkinson’s. A keen musician, I’m trying to work out how to keep doing that too!

What is the one thing you want to change in the world?:
“More tolerance and empathy globally, for the good of people and the planet!”

I’m a Parkinson’s UK Patient and Public Involvement volunteer, and have participated in several  research studies.

I have spoken publicly about having Parkinson’s and patient involvement, including at the King’s Health Partners Neurosciences Institute Workshop, and this video for Parkinson’s UK (

I’ve completed a number of fundraising runs, including the London Marathon 2018 for The Cure Parkinson’s Trust.


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